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2026 UBA5 Awareness Walk

Topeka, Kansas, United States

calendar_today 22 Aug, 2026

directions_run Running

sell $20.00 – $35.00

About the Event

We cordially invite you to participate in the 8th annual UBA5 Awareness Walk. This event will raise money for the UBA5 Foundation. The Foundation will invest your money in medical research for treatment options and provide financial support to families with children affected by this disease. The UBA5 Foundation was founded by two eastern Kansas families who after years of testing discovered their children suffered from this rare genetic mutation. Currently, there are only around 30-40 people affected worldwide, and growing. Individuals with this genetic mutation suffer from irretractable epilepsy, dystonia, developmental delays, microcephaly, hypotonia, spasticity, failure to thrive, and vision defects. UBA5 also causes progressive brain deterioration, atrophy and necrosis. Little is currently known about this mutation and there is no standard treatment for any one patient. This is why raising funds for continuing research is vital. More research means treatment plans and possibly a CURE for those suffering. The symptoms of UBA5 also limit the ability to walk, talk or run. We are going to MOVE for them by raising awareness and funds.

We hit our $50,000 goal and are in the process of investing it in research initiatives. We are starting over with a new $50,000 goal! Help us reach our goal and MOVE for those affected by UBA5.

Races Offered

Awareness Walk (Adult Registration) 18 years +

Aug 22, 2026

straighten

Distance — 1 Miles

terrain

Type — Running

timer

09:00

sell

$35.00

Awareness Walk (Child Registration) 3 years-17 years old

Aug 22, 2026

straighten

Distance — 1 Miles

terrain

Type — Running

timer

09:00

sell

$20.00

Awareness Walk (Children Under 3 years of Age)

Aug 22, 2026

straighten

Distance — Awareness Walk (Children Under 3 years of Age)

terrain

Type — Running

timer

09:00

sell

$0.00

Weather History

These values represent the 3-year monthly averages for August in Topeka.

thermostat Temperature

20.8° / 30.9°

wb_sunny Feels like

21.7° / 31.7°

light_mode Avg sunshine hours

11h 15m

water_drop Avg rainfall

3.0 mm

ac_unit Avg snowfall

—

air Avg wind speed

10.9 km/h (Light breeze)

opacity Sweat loss rate

Very high

terrain Course conditions

Hard and dry surface

sunny Max UV Index

High (7.0)

humidity_mid Humidity

67.6%

wb_twilight Sunrise

06:36

nightlight Sunset

20:15

About Topeka

Learn more about the host city, Topeka.

Topeka is the capital of Kansas. Visitors come to see the Kansas Museum of History, Topeka Zoo, and Renisch Rose Gardens. The metropolitan area is rich in history and highly favored by nature. In 2019, it was home to 125,000 people.