TCSF 4th Annual VIRTUAL Run, Roll, and Stroll

Join TCSF’s 4th Annual Virtual Run, Roll, & Stroll

Walk, run, roll, or stroll 5K (3.1 miles) or 1 mile anytime, anywhere between October 1–31, 2026 in honor of the SCN8A community! This virtual race connects participants worldwide while raising funds for The Cute Syndrome Foundation (TCSF), a nonprofit dedicated to SCN8A awareness, research, and family support.

Registration
- $10 USD includes: entry, donation to TCSF, printable race bib, and a virtual finisher badge.
- Shirts & merch available separately in our Bonfire Store!

Why a Virtual Race?
SCN8A is rare, and families are spread across the globe. A virtual event allows affected individuals, families, friends, researchers, care teams, and communities to join together from anywhere, anytime - whether in your neighborhood, favorite trail, or even on a treadmill.

What’s Included
-Donation to The Cute Syndrome Foundation
-Printable race bib & finisher badge: self-report your time for 5K or 1 mile on RunSignUp
-Chance to win TCSF swag in three categories: fastest participant, biggest fundraiser, and most spirited photo

Make It Fun
- Invite friends and family to join you
- Dress in purple or race gear and share photos
- Create a team and raise funds for TCSF!

Fundraising
You can set up a personal or team page during registration. Teams are a perfect way to celebrate a loved one, rally friends and family, or participate as an organization. Share your link with friends and family to boost awareness and support!

About SCN8A
SCN8A is a gene that helps regulate brain cell function. Variants can cause severe challenges, including difficult-to-control epilepsy, developmental delays, movement disorders, feeding and respiratory issues, and more. Symptoms usually appear in infancy or childhood and typically last a lifetime. There is currently no cure for SCN8A-related disorders.

Why Support TCSF?

Since 2013, TCSF has:

- Connected with 600 families in 53 countries
- Funded $500,000+ in SCN8A research
- Provided $55,000+ in patient assistance grants for therapies, medications, and equipment
- Awarded $71,000+ in travel grants for families attending the Annual Gathering
- Hosted 1 Annual Gatherings bringing families, clinicians, and researchers together
- Reached 90,000+ people with this year’s SCN8A Awareness Day campaign
- Supported caregivers through private groups, grief recovery, and life coaching
- Built community through local Cute Connections meetups
- Honored the memory of SCN8A angels

Your participation makes a difference. We are stronger together!